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There’s only like 500,000 cases in the world, so we need to get the message out. I love coming to this event, and it’s so wonderful to see these kids every year. Without that personal connection, not everybody knows what families go through either, explained Cox, a longtime client of Pett-Joseph’s sister, Cynthia Pett-Dante: “It’s nice to see the progress but there’s so much more to do.
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What these families go through is tragic,” Cuoco said. I want to do everything I can to help and spread awareness that this has got to be cured. There are certain families that I’m really connected with. “I am actually seeing a lot of people here I know.” One of those people, Isaiah, who battles EB, sat in the front row during every episode of season 12 of The Big Bang Theory. … I have gotten to know a lot of the families and I, every time I talk about it …” Just then Cuoco got choked up, with tears filling her eyes. A longtime client of Pett-Joseph, the actress has known Brandon nearly his entire life and thus has spent time with many EB kids: “This cause is so near and dear to our hearts. “I’m not into the whole celebrity thing but when all these A-listers show up and come out for this - it’s huge,” Cuoco told The Hollywood Reporter. By you showing up, we can show up for the EB community.”
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… In a town where relationships can be fleeting, your support has never wavered and that is not lost on us. That meant more hospital visits, more procedures, more difficult days getting out of bed and more painful wounds, but as we look around, we know that we are not in this fight alone. “For our family, this has been an especially challenging year as new health issues arose for Brandon and challenged an already difficult struggle. “A lot has changed in two years since we were up on this stage, but our reason for being here remains the same: to fund a cure and help ease the pain of those living with EB,” said Pett-Joseph after doling out thank yous to vendors, volunteers, researchers and clients. In addition to all the boldfaced names, there were many people living and fighting EB in the audience, including Pett-Joseph’s son Brandon. Gathering those elements alone was quite a Herculean task, but so is living with epidermolysis bullosa, as the event highlighted.ĮB is a rare genetic disorder that affects the skin, causing it to tear, blister and/or shear, which causes severe pain, disfigurement and wounds that sometimes never heal. The last such event, in 2017, featured sets by Sting and Chris Cornell and an introduction by Brad Pitt, all to raise research funds for EBMRF. Sunday’s show was just as A-list, with performers Adam Sandler, Eddie Vedder, Glen Hansard and Judd Apatow in front of guests like Julia Roberts, Sean Penn, Courteney Cox, Rami Malek, Kaley Cuoco, Elizabeth Olsen and dozens of others.
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“I bet you guys all thought that we had two years to plan this because it’s been so long, but we didn’t - we had six weeks,” said Pett-Joseph, revealing a quick sprint to pull the strings and orchestrate Rock4EB!, a starry, rock and comedy-fueled fundraiser for a shocking skin condition called epidermolysis bullosa.